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Many rare disease patients believe that because they have coverage (commercial, Medicaid or Medicare) that they will be able to utilize the medicine or technology that was developed for their rare disease. Unfortunately, this is not always the case. After rounds of prior authorizations and appeals, patients are often left with uncertainty. Many advances have been made, with significant advances in rare disease treatment on the horizon. However, the health care system in the United States has been slow in making those advances available to patients. The Facts: -Rare diseases individually affect small numbers of patients, collectively they affect as many as 25 million Americans – making this a serious public health concern. -An orphan disease is defined as a condition that affects fewer than 200,000 people nationwide. -There are over 7,000 known rare diseases and over 50 percent of rare diseases affect children. -During the first 25 years of the Orphan Drug Act (passed in 1983), 326 new drugs were approved by the FDA and brought to market for all rare disease patients combined. -Rare diseases account for 35% of children’s deaths in the first year of life. RAAP began in 2017 as an ad hoc coalition of life sciences and patient stakeholders focused on advocating for solutions to rare disease access to health care. The organization has evolved and is now a non-profit that is engaged in ongoing initiatives on both the Federal and State levels. RAAP is committed to exploring policy solutions to address structural issues in access and coverage and will engage with research, public education, issue advocacy, and lobbying activities to shine a light on the challenges facing rare disease patients; and offer common sense solutions to them. Current Projects: -State Educational Partnership with NCSL -Medicare Part D -Medicare -State Reinsurance Project RAAP is led by Michael Eging - 25 years as a life sciences professional and 12 years advocating on rare disease issues.

Rare Access Action Project (RAAP) A.I CyberSecurity Scoring

RAAP

Company Details

Linkedin ID:

raap

Employees number:

5

Number of followers:

1,456

NAICS:

921

Industry Type:

Public Policy Offices

Homepage:

rareaccessactionproject.com

IP Addresses:

0

Company ID:

RAR_3238434

Scan Status:

In-progress

AI scoreRAAP Risk Score (AI oriented)

Between 700 and 749

https://images.rankiteo.com/companyimages/raap.jpeg
RAAP Public Policy Offices
Updated:
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globalscoreRAAP Global Score (TPRM)

XXXX

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RAAP Public Policy Offices
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RAAP Company CyberSecurity News & History

Past Incidents
0
Attack Types
0
No data available
Ailogo

RAAP Company Scoring based on AI Models

Cyber Incidents Likelihood 3 - 6 - 9 months

🔒
Incident Predictions locked
Access Monitoring Plan

A.I Risk Score Likelihood 3 - 6 - 9 months

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A.I. Risk Score Predictions locked
Access Monitoring Plan
statics

Underwriter Stats for RAAP

Incidents vs Public Policy Offices Industry Average (This Year)

No incidents recorded for Rare Access Action Project (RAAP) in 2025.

Incidents vs All-Companies Average (This Year)

No incidents recorded for Rare Access Action Project (RAAP) in 2025.

Incident Types RAAP vs Public Policy Offices Industry Avg (This Year)

No incidents recorded for Rare Access Action Project (RAAP) in 2025.

Incident History — RAAP (X = Date, Y = Severity)

RAAP cyber incidents detection timeline including parent company and subsidiaries

RAAP Company Subsidiaries

SubsidiaryImage

Many rare disease patients believe that because they have coverage (commercial, Medicaid or Medicare) that they will be able to utilize the medicine or technology that was developed for their rare disease. Unfortunately, this is not always the case. After rounds of prior authorizations and appeals, patients are often left with uncertainty. Many advances have been made, with significant advances in rare disease treatment on the horizon. However, the health care system in the United States has been slow in making those advances available to patients. The Facts: -Rare diseases individually affect small numbers of patients, collectively they affect as many as 25 million Americans – making this a serious public health concern. -An orphan disease is defined as a condition that affects fewer than 200,000 people nationwide. -There are over 7,000 known rare diseases and over 50 percent of rare diseases affect children. -During the first 25 years of the Orphan Drug Act (passed in 1983), 326 new drugs were approved by the FDA and brought to market for all rare disease patients combined. -Rare diseases account for 35% of children’s deaths in the first year of life. RAAP began in 2017 as an ad hoc coalition of life sciences and patient stakeholders focused on advocating for solutions to rare disease access to health care. The organization has evolved and is now a non-profit that is engaged in ongoing initiatives on both the Federal and State levels. RAAP is committed to exploring policy solutions to address structural issues in access and coverage and will engage with research, public education, issue advocacy, and lobbying activities to shine a light on the challenges facing rare disease patients; and offer common sense solutions to them. Current Projects: -State Educational Partnership with NCSL -Medicare Part D -Medicare -State Reinsurance Project RAAP is led by Michael Eging - 25 years as a life sciences professional and 12 years advocating on rare disease issues.

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faq

Frequently Asked Questions

Explore insights on cybersecurity incidents, risk posture, and Rankiteo's assessments.

RAAP CyberSecurity History Information

Official Website of Rare Access Action Project (RAAP)

The official website of Rare Access Action Project (RAAP) is http://www.rareaccessactionproject.com.

Rare Access Action Project (RAAP)’s AI-Generated Cybersecurity Score

According to Rankiteo, Rare Access Action Project (RAAP)’s AI-generated cybersecurity score is 742, reflecting their Moderate security posture.

How many security badges does Rare Access Action Project (RAAP)’ have ?

According to Rankiteo, Rare Access Action Project (RAAP) currently holds 0 security badges, indicating that no recognized compliance certifications are currently verified for the organization.

Does Rare Access Action Project (RAAP) have SOC 2 Type 1 certification ?

According to Rankiteo, Rare Access Action Project (RAAP) is not certified under SOC 2 Type 1.

Does Rare Access Action Project (RAAP) have SOC 2 Type 2 certification ?

According to Rankiteo, Rare Access Action Project (RAAP) does not hold a SOC 2 Type 2 certification.

Does Rare Access Action Project (RAAP) comply with GDPR ?

According to Rankiteo, Rare Access Action Project (RAAP) is not listed as GDPR compliant.

Does Rare Access Action Project (RAAP) have PCI DSS certification ?

According to Rankiteo, Rare Access Action Project (RAAP) does not currently maintain PCI DSS compliance.

Does Rare Access Action Project (RAAP) comply with HIPAA ?

According to Rankiteo, Rare Access Action Project (RAAP) is not compliant with HIPAA regulations.

Does Rare Access Action Project (RAAP) have ISO 27001 certification ?

According to Rankiteo,Rare Access Action Project (RAAP) is not certified under ISO 27001, indicating the absence of a formally recognized information security management framework.

Industry Classification of Rare Access Action Project (RAAP)

Rare Access Action Project (RAAP) operates primarily in the Public Policy Offices industry.

Number of Employees at Rare Access Action Project (RAAP)

Rare Access Action Project (RAAP) employs approximately 5 people worldwide.

Subsidiaries Owned by Rare Access Action Project (RAAP)

Rare Access Action Project (RAAP) presently has no subsidiaries across any sectors.

Rare Access Action Project (RAAP)’s LinkedIn Followers

Rare Access Action Project (RAAP)’s official LinkedIn profile has approximately 1,456 followers.

NAICS Classification of Rare Access Action Project (RAAP)

Rare Access Action Project (RAAP) is classified under the NAICS code 921, which corresponds to Executive, Legislative, and Other General Government Support.

Rare Access Action Project (RAAP)’s Presence on Crunchbase

No, Rare Access Action Project (RAAP) does not have a profile on Crunchbase.

Rare Access Action Project (RAAP)’s Presence on LinkedIn

Yes, Rare Access Action Project (RAAP) maintains an official LinkedIn profile, which is actively utilized for branding and talent engagement, which can be accessed here: https://www.linkedin.com/company/raap.

Cybersecurity Incidents Involving Rare Access Action Project (RAAP)

As of November 27, 2025, Rankiteo reports that Rare Access Action Project (RAAP) has not experienced any cybersecurity incidents.

Number of Peer and Competitor Companies

Rare Access Action Project (RAAP) has an estimated 1,026 peer or competitor companies worldwide.

Rare Access Action Project (RAAP) CyberSecurity History Information

How many cyber incidents has Rare Access Action Project (RAAP) faced ?

Total Incidents: According to Rankiteo, Rare Access Action Project (RAAP) has faced 0 incidents in the past.

What types of cybersecurity incidents have occurred at Rare Access Action Project (RAAP) ?

Incident Types: The types of cybersecurity incidents that have occurred include .

Incident Details

What are the most common types of attacks the company has faced ?

Additional Questions

cve

Latest Global CVEs (Not Company-Specific)

Description

Angular is a development platform for building mobile and desktop web applications using TypeScript/JavaScript and other languages. Prior to versions 19.2.16, 20.3.14, and 21.0.1, there is a XSRF token leakage via protocol-relative URLs in angular HTTP clients. The vulnerability is a Credential Leak by App Logic that leads to the unauthorized disclosure of the Cross-Site Request Forgery (XSRF) token to an attacker-controlled domain. Angular's HttpClient has a built-in XSRF protection mechanism that works by checking if a request URL starts with a protocol (http:// or https://) to determine if it is cross-origin. If the URL starts with protocol-relative URL (//), it is incorrectly treated as a same-origin request, and the XSRF token is automatically added to the X-XSRF-TOKEN header. This issue has been patched in versions 19.2.16, 20.3.14, and 21.0.1. A workaround for this issue involves avoiding using protocol-relative URLs (URLs starting with //) in HttpClient requests. All backend communication URLs should be hardcoded as relative paths (starting with a single /) or fully qualified, trusted absolute URLs.

Risk Information
cvss4
Base: 7.7
Severity: LOW
CVSS:4.0/AV:N/AC:L/AT:N/PR:N/UI:N/VC:N/VI:N/VA:N/SC:H/SI:N/SA:N/E:X/CR:X/IR:X/AR:X/MAV:X/MAC:X/MAT:X/MPR:X/MUI:X/MVC:X/MVI:X/MVA:X/MSC:X/MSI:X/MSA:X/S:X/AU:X/R:X/V:X/RE:X/U:X
Description

Forge (also called `node-forge`) is a native implementation of Transport Layer Security in JavaScript. An Uncontrolled Recursion vulnerability in node-forge versions 1.3.1 and below enables remote, unauthenticated attackers to craft deep ASN.1 structures that trigger unbounded recursive parsing. This leads to a Denial-of-Service (DoS) via stack exhaustion when parsing untrusted DER inputs. This issue has been patched in version 1.3.2.

Risk Information
cvss4
Base: 8.7
Severity: LOW
CVSS:4.0/AV:N/AC:L/AT:N/PR:N/UI:N/VC:N/VI:N/VA:H/SC:N/SI:N/SA:N/E:X/CR:X/IR:X/AR:X/MAV:X/MAC:X/MAT:X/MPR:X/MUI:X/MVC:X/MVI:X/MVA:X/MSC:X/MSI:X/MSA:X/S:X/AU:X/R:X/V:X/RE:X/U:X
Description

Forge (also called `node-forge`) is a native implementation of Transport Layer Security in JavaScript. An Integer Overflow vulnerability in node-forge versions 1.3.1 and below enables remote, unauthenticated attackers to craft ASN.1 structures containing OIDs with oversized arcs. These arcs may be decoded as smaller, trusted OIDs due to 32-bit bitwise truncation, enabling the bypass of downstream OID-based security decisions. This issue has been patched in version 1.3.2.

Risk Information
cvss4
Base: 6.3
Severity: LOW
CVSS:4.0/AV:N/AC:L/AT:P/PR:N/UI:N/VC:N/VI:L/VA:N/SC:N/SI:N/SA:N/E:X/CR:X/IR:X/AR:X/MAV:X/MAC:X/MAT:X/MPR:X/MUI:X/MVC:X/MVI:X/MVA:X/MSC:X/MSI:X/MSA:X/S:X/AU:X/R:X/V:X/RE:X/U:X
Description

Suricata is a network IDS, IPS and NSM engine developed by the OISF (Open Information Security Foundation) and the Suricata community. Prior to versions 7.0.13 and 8.0.2, working with large buffers in Lua scripts can lead to a stack overflow. Users of Lua rules and output scripts may be affected when working with large buffers. This includes a rule passing a large buffer to a Lua script. This issue has been patched in versions 7.0.13 and 8.0.2. A workaround for this issue involves disabling Lua rules and output scripts, or making sure limits, such as stream.depth.reassembly and HTTP response body limits (response-body-limit), are set to less than half the stack size.

Risk Information
cvss3
Base: 7.5
Severity: LOW
CVSS:3.1/AV:N/AC:L/PR:N/UI:N/S:U/C:N/I:N/A:H
Description

Suricata is a network IDS, IPS and NSM engine developed by the OISF (Open Information Security Foundation) and the Suricata community. In versions from 8.0.0 to before 8.0.2, a NULL dereference can occur when the entropy keyword is used in conjunction with base64_data. This issue has been patched in version 8.0.2. A workaround involves disabling rules that use entropy in conjunction with base64_data.

Risk Information
cvss3
Base: 7.5
Severity: LOW
CVSS:3.1/AV:N/AC:L/PR:N/UI:N/S:U/C:N/I:N/A:H

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